Facing the Challenge: Teaching Children with Congenital Heart Disease
Congenital heart disease is one of the most common pediatric chronic illnesses that can have an impact on the lives of affected children and their families. Despite the growing number of school-age children who live with congenital heart disease, these children and their families have rarely had the chance to share their school experiences and provide recommendations to practitioners involved in their education. The present paper is based on a qualitative research study designed to address this knowledge gap. Findings suggest that affected children and families have much to offer policy discussions which aim to develop best practice guidelines. Although the experiences of affected children and their families vary somewhat, their recommendations are similar and can be summarized as the "Five C's of Best Practice": communication, confidentiality, consistency, competence, and compassion.
Keywords: Children with Illness, Education, Best Practice, Qualitative Inquiry
Dr. Jillian Roberts
Associate Professor, The Department of Educational Psychology and Leadership Studies, The University of Victoria